Harper Spero is on the podcast this week and she is sharing what it’s like to live with an invisible illness, specifically, a rare immunodeficiency called Hyper IgE Syndrome. Not only what her day to day life looks like living in this way, but also what it took to find a diagnosis and why she didn’t tell anyone outside of her immediate family about the illness for decades!
Harper shares many parts of her journey including: finding the right doctors to help her, a turning point in her life that made her accept her illness, and how her illness has now become integrated with her purpose.
Listen to learn more about Harper’s journey, her lessons and reflections on what it’s like to live with an invisible illness.
During a fast-paced career in marketing, PR, and event production spanning the beauty, music, and tech industries, Harper’s life came to a halt with a life-altering surgery due to her rare immunodeficiency, Hyper IgE Syndrome. After living quietly with her invisible illness for nearly three decades, Harper’s surgery was the straw that broke her silence, leading to the creation of the Made Visible podcast, sharing her writing with the world, and business coaching and consulting. Her work has been featured in Health, Forbes, Well+Good, and more, and aims to uplift the voices of those living with invisible illnesses. Harper consults with companies and solopreneurs, creates content for brands, hosts writing classes, and gives talks on business, wellness, and beyond. Harper is on the Board of Trustees for the Immune Deficiency Foundation (IDF), and while she’s originally from New York City, she currently lives in Tel Aviv.
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Hearing your stories & experiences, whether it’s how you got through a Transition in your life, or if you’re going through one right now, is really special to me and I’d love to hear from you. ❤️ You know the saying, a problem shared is a problem halved.